Demystifying Disability
What to Know, What to Say, and How to Be an Ally
(Sprache: Englisch)
An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and what not to do) and how you can help make the world a more inclusive place
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An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and what not to do) and how you can help make the world a more inclusive place ONE OF THE BEST BOOKS OF THE YEAR: NPR, Booklist A candid, accessible cheat sheet for anyone who wants to thoughtfully join the conversation . . . Emily makes the intimidating approachable and the complicated clear. Rebekah Taussig, author of Sitting Pretty: The View from My Ordinary, Resilient, Disabled Body
People with disabilities are the world s largest minority, an estimated 15 percent of the global population. But many of us disabled and nondisabled alike don t know how to act, what to say, or how to be an ally to the disability community. Demystifying Disability is a friendly handbook on the important disability issues you need to know about, including:
How to appropriately think, talk, and ask about disability
Recognizing and avoiding ableism (discrimination toward disabled people)
Practicing good disability etiquette
Ensuring accessibility becomes your standard practice, from everyday communication to planning special events
Appreciating disability history and identity
Identifying and speaking up about disability stereotypes in media
Authored by celebrated disability rights advocate, speaker, and writer Emily Ladau, this practical, intersectional guide offers all readers a welcoming place to understand disability as part of the human experience.
Praise for Demystifying Disability
Whether you have a disability, or you are non-disabled, Demystifying Disability is a MUST READ. Emily Ladau is a wise spirit who thinks deeply and writes exquisitely. Judy Heumann, international disability rights advocate and author of Being Heumann
Emily Ladau has done her homework, and Demystifying Disability is her candid, accessible cheat sheet for anyone
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who wants to thoughtfully join the conversation. A teacher who makes you forget you re learning, Emily makes the intimidating approachable and the complicated clear. This book is a generous and needed gift. Rebekah Taussig, author of Sitting Pretty: The View from My Ordinary Resilient Disabled Body
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Introduction:Why Do We Need to Demystify Disability?
One billion. More than one billion people around the world are disabled. In fact, we re the world s largest minority. Statistically speaking, there s a good chance this book is relevant to you. To narrow things down a little more, let s do a quick gut check.
Have you ever tried to talk about disability and found yourself flustered over what words to use?
Have you ever shushed your kid for asking what s wrong with a person who was using wheelchair?
Have you ever shared a news story about a disabled person on social media because you felt warm and fuzzy after reading it?
Have you ever compared yourself to someone with a disability to make yourself feel better about your own life?
If your response was yes to any of these, don t stress. I m not here to judge. Consider this book a safe space to learn and find answers to certain questions you might have but aren t sure how to ask.
It s pretty common for the mere mention of the word disability to evoke fear, confusion, and an endless stream of misconceptions. And often, people don t realize their own biases. There s much work yet to be done to change hearts and minds or, at the very least, to get nondisabled people to stop treating disabled people as a weird cross between precious gems and alien creatures. And I am one of the many disabled people who are passionate about doing such work.
So, a little about me: I have multiple disabilities, including a physical disability, a hearing disability, and mental health disabilities. I use a wheelchair because I was born with Larsen syndrome (LS), a joint and muscle disorder that I inherited from my mom, Ellen, who also has it. You might think that our both having LS is a tragedy, but we don t. In my humble opinion, it s pretty fantastic to have someone built into my life who just gets me. But I know my mom didn t always feel this way. When she and my dad, Marc, were considering having a
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baby, they sought out genetic counseling and were reassured that my mom wouldn t pass on LS. Midway through the pregnancy, though, an ultrasound showed otherwise. My mom was absolutely overcome with guilt, fearing the worst for me and worrying that I d resent her. And even though that couldn t be further from the truth, I don t blame her for these concerns. Society was even less disability-friendly while my mom was growing up than it is now. And once, when I was a baby, a woman was staring at us because she noticed our disabilities, and my mom overheard her say, Look at what that mom did to her baby. That rude comment left a sting that s never gone away.
Even so, in the years since my birth, there s been a continued shift toward greater acceptance and understanding of disability.
But all of us nondisabled and disabled people alike have more to learn about how to make the world a better, more accessible, more inclusive place. So how do we do this? There s a philosophy I ve come to embrace that informs everything I do:
If the disability community wants a world that s accessible to us, then we must make ideas and experiences of disability accessible to the world.
How can we expect understanding and acceptance of disability if we aren t willing to share our insights and our stories? I recognize this isn t always a popular line of thought among many disabled people. Educating others about the nuances of your daily life is a heck of a lot of work, and it can take an emotional toll especially when there s pushback, or the people who need to learn just won t listen. It makes sense not to want to live our lives moving from one teachable moment to the next. We&r
Even so, in the years since my birth, there s been a continued shift toward greater acceptance and understanding of disability.
But all of us nondisabled and disabled people alike have more to learn about how to make the world a better, more accessible, more inclusive place. So how do we do this? There s a philosophy I ve come to embrace that informs everything I do:
If the disability community wants a world that s accessible to us, then we must make ideas and experiences of disability accessible to the world.
How can we expect understanding and acceptance of disability if we aren t willing to share our insights and our stories? I recognize this isn t always a popular line of thought among many disabled people. Educating others about the nuances of your daily life is a heck of a lot of work, and it can take an emotional toll especially when there s pushback, or the people who need to learn just won t listen. It makes sense not to want to live our lives moving from one teachable moment to the next. We&r
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Autoren-Porträt von Emily Ladau
Emily Ladau is an internationally known disability rights activist, writer, and speaker. She is the editor in chief of the Rooted in Rights blog, a platform dedicated to amplifying authentic narratives of the intersectional disability experience. She also co-hosts The Accessible Stall, a podcast about disability issues. Ladau's writing has been published in outlets including the New York Times, HuffPost, CNN, Self, Salon, Vice, The Daily Beast, Variety, and Marie Claire Australia. Her work is also included in the Criptiques Anthology and About Us: Essays from the Disability Series of the New York Times. She has served as an expert source on disability issues for outlets including NPR, Vox, Washington Post, and Teen Vogue, and has been featured in a range of press outlets including Newsday, BuzzFeed, CBS News, and U.S. News & World Report.
Bibliographische Angaben
- Autor: Emily Ladau
- 2021, 176 Seiten, Masse: 14,9 x 20,1 cm, Kartoniert (TB), Englisch
- Verlag: Ten Speed Press
- ISBN-10: 1984858971
- ISBN-13: 9781984858979
- Erscheinungsdatum: 06.09.2021
Sprache:
Englisch
Pressezitat
If being a good ally to disabled people is your goal . . . Ladau s guide is a goldmine. Book RiotActivist and writer Emily Ladau is a responsible guide and advocate for change, and her book is one that everyone could benefit from reading. BookPage
Emily Ladau provides a welcoming, easy-to-read guide to disability. I highly recommend this book to readers seeking to deepen their understanding of disability and ableism. Haben Girma, human rights lawyer, speaker, and author of Haben: The Deafblind Woman Who Conquered Harvard Law
Demystifying Disability is both comprehensive in its scope and easy to understand. I can t recommend this book enough. Eric Garcia, author of We re Not Broken: Changing the Autism Conversation
Demystifying Disability is a generous and approachable companion to the world of disability especially for people who are (for the time being, at least) not disabled. I'll be using it as a reference book for years to come. Ann Friedman, co-author of Big Friendship
Emily Ladau has crafted an absolutely essential guide to understanding disability. In it, she dispels countless myths that surround the disabled experience, while providing practical tips for interacting with disabled people in healthier and more positive ways. Shane Burcaw, author of Laughing at My Nightmare
Demystifying Disability is a powerful reminder that disability is a vast spectrum with a wide range of voices and experiences. Emily Ladau expertly addresses so many of the common issues and pitfalls (and how to learn from them) able-bodied people face when attempting to be supportive of the disability community. I am grateful for this book and Emily s voice. Grace Bonney, author of In the Company of Women
From general disability knowledge, to disability rights, to ableism, to what to say and what not to say, this book will provide everyone with more understanding and empathy (not pity!)
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about what it really means to be disabled and what non-disabled people can do to be better allies, friends, parents, and partners with the disability community. Amy Webb, author of the award-winning Charley and Emma picture book series
Demystifying Disability is a great primer for anyone who wants to learn more about the largest minority in the world, and how to lead with accessibility at the forefront. Victor Calise, commissioner of the New York City Mayor s Office for People with Disabilities
Demystifying Disability is a game-changer in so many ways. This book is long overdue and is a must read for both new and experienced allies. Chris Ulmer, founder of Special Books by Special Kids
Emily Ladau is a once in a generation kind of writer and activist whose legacy can t even be quantified. The world needs her. The world needs this book. Liz Plank, award-winning journalist and author of For the Love of Men
This wonderfully accessible and intimate volume delivers a comprehensive review of the complicated topic of the disability experience. Everybody should read this book. Emily Perl Kingsley, writer for Sesame Street
Demystifying Disability is a great primer for anyone who wants to learn more about the largest minority in the world, and how to lead with accessibility at the forefront. Victor Calise, commissioner of the New York City Mayor s Office for People with Disabilities
Demystifying Disability is a game-changer in so many ways. This book is long overdue and is a must read for both new and experienced allies. Chris Ulmer, founder of Special Books by Special Kids
Emily Ladau is a once in a generation kind of writer and activist whose legacy can t even be quantified. The world needs her. The world needs this book. Liz Plank, award-winning journalist and author of For the Love of Men
This wonderfully accessible and intimate volume delivers a comprehensive review of the complicated topic of the disability experience. Everybody should read this book. Emily Perl Kingsley, writer for Sesame Street
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